ParentingApproach for Parents with Disabled Children
ParentingApproach for Parents with Disabled Children
Raisinga kid with special needs is a challenging responsibility for anyparent. Whether the child was born with the disability or acquiredthe condition after an illness or through an accident, no parent iscomfortable with the situation. When parents learn that their childis physically or mentally challenged, they start a journey whichtakes them to a life filled with difficult choices, high emotions andunlimited interaction with different specialists and professionals.
Theyare constantly on the lookout for new services and information thatmight help their child get back to a normal state. Without the properaid and care, such parents often fall into depression or take a longtime in the grief state. Parents of such children are likely to beworried about the upbringing and upkeep of the child, and mostly,they are concerned with their wellbeing. Such children do have morespecial needs as compared to the regular needs given to normalchildren.
Assuch, the parents often find themselves to be overwhelmed by thenecessary attention required, the medical and the educationalresponsibilities (Smith, 2003). Regardless as to whether the needs ofthe mentally or physically challenged child are complicated orminimal, the parents will inevitably be affected. Therefore, supportfrom their family members, friends, and community or even by paidcaregivers will be critical to help them maintain a balance in theirhomes.
Parentstaking care of children with disability are often very vulnerable.Thus they do need some extra support and help emotionally. Moreoften, our society turns away from people with such vulnerability(Susan Neel, 2010). In that regard, we need to overlook theirlimitations and come to realize that although their child or childrenhave some physical or mental problems, the same children have theintelligence, expectations, strengths, weaknesses just like normalkids (NCD, 2012).
Withthe necessary emotional support that can be given to such parents,the physically challenged child can be assisted to have a healthylife enjoyed by the other kids. Emotional support requires showingoptimism, patience, tolerance, love and giving encouragement to theparents who are helpful. Moreover, just taking the time to be withthe parents and giving them an audience that they find someone totalk to will be of great help and relief to them.
Attimes, Physical exhaustion will take a toll on the parents of thechild with special needs, and this is usually in proportion to theamount of special care needed by the child. Such parents might beforced to bathe, move, cloth, diaper, and feed the child. In such acase, if necessary support is not given to them, stress will build upand make them vulnerable to having even a nervous breakdown (Smith,2003).
Theolder and heavier the child with the disability, the more physicallyexhausted the parents are likely to be. This means extraresponsibility on the parents or the guardian. The child needs to bewatched to avoid any inadvertent self-harm that might arise such asfalling down on a staircase or while walking along the streets. Thisputs additional responsibilities on the parents and can causephysical exhaustion. With physical exhaustion comes stress, which cancause the parents to experience burnout while giving the necessarycare.
Toraise a child having a disability is quite expensive unlike raising anormal child. The parent is likely to incur expenses arising frommedical supplies, medical care, fees, private tuition, and equipmentfor adaptive learning, specialized transport and at times medicalequipment. For a financially unstable family, such costs will bedraining and without any financial support accorded to them, it mightbuild up financial stress to the parents, and it can be worse wherethere are other children involved who also are dependent on theirparents.
Consideringthat care for a child with special needs can last over the lifespanof the child instead of the normal 18 years, financial help iscritical to ensure that the child is comfortable. The Parents willalso have to save money in a trust fund to support the specialchild`s care later in life should they die. When parents receivefinancial support, they can afford the necessary resources that areessential. The financial aid accorded to the parents would be shot inthe arm to the parents, and it is an encouraging and motivatinggesture to them (Smith, 2003).
Sincemost cultures have a negative view of disability, it is essentiallynecessary to make parents of the physically challenged children feelthat they are part of the community and assure them of continuedsupport in taking care of their children (Susan Neel, 2010). Cultureshould not dissociate such families.
Inconclusion, developing support structures for the physicallychallenged and giving incentives and affordable care services forsuch individuals, it will encourage parents with physicallychallenged children not to hide their kids. Without this necessarysupport, the parents are most likely to feel alone and isolated andwould be lost in their world not knowing where to start their searchfor any crucial information, understanding support, and assistance.
NCD. (2012). Supporting Parents with Disabilities and Their Families in the Community.
Smith, P. M. (2003). Parenting a Child with Special Needs. National Information Center for Children and Youth with Disabilities, 1-16.
Susan Neel, a. D. (2010). Families of Children with Disabilities: A Review of Literature and Recommendations for Interventions. Journal of Early and Intensive Behavior Intervention, 93-107.